Tyumen family's heart overflows with joy: millions raised for son's treatment
The medication to sustain the boy«s life costs about 300 million rubles, offering him a chance.
On Monday, 27 July, it became known that nearly 300 million rubles had been raised for the Ibraev family from Tyumen to fight the deadly disease found in their young son. Adis was diagnosed with Duchenne muscular dystrophy (DMD), a serious condition. The boy requires treatment in the form of a very costly injection.
Duchenne muscular dystrophy is a severe hereditary disease in which muscle fibers gradually break down and die, replaced by connective and fatty tissue. This leads to increasing muscle weakness, which over time results in the loss of the ability to walk, as well as serious heart and breathing problems.
«Today is the day we have been working toward for so long. My heart is overflowing with joy — our fundraiser for Adis is complete! We have been through so much, but you were there for us. Every word, every ruble, every prayer — these are rays of light that warmed us in our darkest moment. Thank you, our volunteer wizards. Thank you to all the donors for giving Adis a chance at a healthy future. You are our family, and we will remember your kindness for the rest of our lives,» the boy«s parents wrote in a VK group.
Adis«s father briefly confirmed to 72.RU that the fundraiser had been closed. We were unable to reach the boy»s mother by phone.
Saule Ibraeva and her husband are raising four children. The family is ordinary; they never dreamed of millions. Daulen works as a bus driver, and she is a kindergarten teacher, currently on maternity leave. A few months ago, their lives were divided into before and after. Their son Adis was diagnosed with a terrible disease — Duchenne muscular dystrophy. In a previous article, we told the story of this family and their fight for their son — about how not to give up, charitable bureaucracy, and how much the life-saving injection that could extend the child«s life costs.
We also reported that Tyumen resident Olga Weis, who required emergency heart surgery, had her valve replaced. Her daughter told the editorial team about it. We covered this story in April 2026. In January 2026, the 67-year-old Tyumen woman felt unwell: she developed weakness in her legs and a strong burning sensation in her chest.
Olga Weis was taken to the hospital, where it soon became clear that she needed urgent heart surgery. However, the surgery was refused under compulsory medical insurance — despite being born in Russia and living there for over a decade, the woman cannot obtain citizenship due to a mistake in her documents. The family had to launch a fundraiser for 1.2 million rubles.
